Wednesday, September 19, 2007

5361

Laundry day and it's cooled down a lot. Rain maybe tonight/tomorrow. Shifting weather patterns--Fall is in the air! Time to shift from cold cereals to hot oatmeal. Oh, yeah!

Been doing some research on the web about PD interventions. Finding some interesting stuff! Especially videos of techniques that seem to alter the patterns of the disease. Some of it seems far out, but there are videos that demonstrate results.

There's "banding"--wrapping an Ace bandage around say a wrist that is either non-responsive or cogwheeling and having the symptom disappear. Demonstrates an effect of neural feedback on the system. There's the "blue glasses" video--showing how wearing blue glasses (or looking through a blue gel) alters the symptoms. The subject went from severe dyskinesia to complete control just by wearing some blue sunglasses. And then there's PBS (not NPR-related), peripheral brain stimulation--the implantation of 40-60 small titanium needle points in the ear cartilage. PBS results take more recovery time (than the blue glasses), but seems to work. And there's a lot more.

There are videos on people who were given GDNF (glial cell protein) who showed miraculous improvement. The trial was stopped and the test subjects were left to cope with the let down. They have a site filled with their testimonials and their pleas to be given GDNF again.

Continue to find discussions about the caveats regarding medication. Makes me feel better about not going that route. The long term effects are awful!

Have an acupressure massage in the morrow! Feeling well this night--may it continue!

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